Life-threatening Illness• Cultural perspective on life-threatening illness – How you live, think, speak, and behave – Viewed differently by different cultures – Family strongest influenc
Trang 1Chapter 6
The Therapeutic Approach to the Patient
with a Life-threatening Illness
Trang 2Life-threatening Illness
• Cultural perspective on life-threatening illness
– How you live, think, speak, and behave
– Viewed differently by different cultures
– Family strongest influence
• Work with family and belief system
Trang 3Choices in Life-threatening Illness
• Urgency of decisions depend on
possible life expectancy
• Patients have right to choose or refuse treatment
• Palliative care focuses on quality of life, relieving symptoms of pain and
suffering
Trang 4Choices in Life-threatening Illness
• VSED (voluntarily stop eating and
drinking)
• Total sedation; medication causes
unconsciousness and eventually death
• In a few states, option to seek aid in
dying
Trang 5Choices in Life-threatening Illness
• Issues appropriate to discuss with
patients facing life-threatening illnesses:
– Alternative methods of treatment
– Pain management and treatment
– Loss of self image and independence
– Legal protection
• Durable power of attorney for health care or health care proxy
• Health care directives
• Patient Self-Determination Act
Trang 6Choices in Life-threatening Illness
• Issues appropriate to discuss with
patients facing life-threatening illnesses:
– Finances; insurance coverage
– Emotional needs of patient and family
– Life-threatening illnesses are family illnesses
• Primary patients (the one with the illness)
• Secondary patients (family and friends of patient)
• Helping patients live their last days is important
Trang 7The Range of Psychological Suffering
• Often leads to physical symptoms
• Help patients understand that
relationships change
• Encourage patients to set goals for
themselves
• Listen carefully and seek clues to
nonverbal communication
Trang 8The Patient with HIV/AIDS
• Patients will have great stress when
diagnosed with HIV or AIDS
– May have fairly good health for a period or very serious near-death illness
– Recent developments in treatment of HIV infection and AIDS help patients to live longer
– Lives greatly compromised because of
suppressed immune system
Trang 9The Patient with HIV/AIDS
• HIV affects mostly individuals who are relatively young
• Treating HIV expensive
• Many patients have little or no
insurance coverage
Trang 10The Patient with HIV/AIDS
• May experience central nervous system involvement
• AIDS when patients’ CD4 counts
decline to less than 200
• Particular type of opportunistic infection
or tumor, AIDS-related brain or lung
illness, severe body wasting
Trang 11The Patient with Cancer
• Patients believe cancer and death
equated
• Choosing treatment complicated and has many facets
• Treatments are surgery, radiation,
chemotherapy or combination
Trang 12The Patient with Cancer
• Patients can experience serious side
effects from both radiation and
chemotherapy
• Even when there is “nothing more to do” related to the cancer, there is still “much
to do” to maintain comfort
Trang 13The Patient with ESRD
• Loss of kidney (renal) function leads to end-stage renal disease (ESRD)
• Patients cannot live long unless they receive dialysis or kidney transplant
• Dialysis is filtering blood to remove
wastes and can sustain life for years
• Some patients will opt not to have
dialysis and to let death come from
kidney failure
Trang 14The Stages of Grief
• Dr Elisabeth Kübler-Ross determined stages of grief
– Denial
– Anger
– Bargaining
– Depression
– Acceptance
Trang 15The Stages of Grief
• Not all patients go through all five
stages
• Some patients go through all five stages over and over again, each time with a
little less stress; others get stuck in one stage
• No two patients follow the same pattern
• Family members also suffer grief and
are often in different stages
Trang 16The Stages of Grief
• The acronym TEAR
– To accept the reality of the loss
– Experience the pain of the loss
– Adjust to what was lost
– Reinvest in a new reality
Trang 17The Challenge for the Medical Assistant
• Be sensitive and respectful
– Must be comfortable treating all patients
• Nonmedical forms of assistance
– Referrals to community-based organizations – Recommend support systems
– Spiritual support