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Psychosocial problems tokyo final

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 1 Describe key psychosocial problems found among cancer survivors in multiple settings during the past 25 years: distress, depression, fatigue, cognitive changes, body image, sexual

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Pat Fobair, LCSW, MPH Supportive Care Program Cancer Center, Stanford University Hospital

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 1 ) Describe key psychosocial problems

found among cancer survivors in multiple settings during the past 25 years: distress, depression, fatigue, cognitive changes,

body image, sexual dysfunction.

 2) Discuss four effective interventions for improving mood and returning survivors to

a sense of inner control: physical exercise, group support, journal writing, yoga,

meditation, and imagery.

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 Literature search of English language abstracts and databases,

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 20% (77) Faller et al 2003

Psychother Psychosom Med

Psychol (Brca) Germany

 25% (46) Flatten et al 2003

Psychother Psychosom Med

Psychol (Surgical tumors) Germany

 38% (2776) Carlson et al

2004 Br J Cancer (All ca) Canada

 40% t1(127) Mehnert & Koch

2006, 33% at t2, oncology (Brca) Germany

Psycho- 47% (135) Cliff & MacDonagh BJU Int 2000 (Prostate) Britain

 62% (136) Tagay et al 2006 Qual Life Res May;15(4) 695- (Thyroid) Germany

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 In, Spiegel, D and J Giese-Davis (2003)

"Depression and cancer: mechanisms and

disease progression." Biol Psychiatry 54(3):

269-282,

rates among cancer populations to be between

a fourth (25%) and a third (33%) of each group.

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 16% (127) Mehnert & Koch

 37% (303) Kissane et al

2004 Aust NZJ Psychiatry (Brca)

 38% (60) Pelletier et al 2002

J Neurooncol.(Brain) Canada

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 In study w/5,736 Lymphoma and leukemia pts vs 2565 sibling controls found that survivors were signif more likely than controls to report symptoms of

depression and somatic distress Zebrack et al 2002, Pediatrics USA

 In study w/1,101 adult survivors of

childhood brain cancer and 2,817 controls

found that survivors reported signifi higher global distress and

depression scores than siblings Zebrack et al 2004, JCO USA

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 Clinically depressed Hodgkin’s patients were less likely (38%) to achieve a return of energy by the fifth year following treatment Fobair et al 1986, JCO

 Among 161 survivors of childhood leukemia,

fatigue and depression were highly correlated

Meeske et al 2005, JCO.

 Fatigue and depression were highly correlated in

a study of 1,933 Korean breast cancer patients

Kim et al 2006, ASCO Abstract.

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 66% of 1,933 Korean br.ca survivors w/fatigue Kim et al

2006 ASCO abstract

 76% of 379 pts 2 yrs + tx W/ fatigue 3+days each mo

(30% w/daily fatigue.) Curt et al

2000, The Oncologist US

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 511 w/HD’s vs 224 siblings Ng et al 2005, AnnOncol “HD’s

were signif more likely to report lower mean fatigue scores.” USA

 818 w/HD’s vs 935 controls Ruffer et al 2003, Eur J

Cancer.”Fatigue levels of HD pts are signif higher than control groups Germany

 93 w/HD’s vs 186 controls Joly et al 1996, JCO “Compared with controls, HD patients reported more chronic fatigue.” France

 791 w/testicular ca vs HD’s & GenPop Fossa et al 2003

“Fatigue 24% w/HD’s, 16% w/TCS, 10% GenPop.” Norway

 110 w/BrCa pts vs 100 controls Tchen et al 2003 JCO Patients were more fatigued than controls (P<0001) Canada

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 1000 patients, in 28 studies: 44% chemotherapy, 44% radiation

patients,and 64.5% of patients w/ adj treatments had cognitive

deficits in meta-analysis. Welzel et al 2005 Strahlenther Onkol Germany

 110 Brca pts vs 100 controls (16 % vs 4%, P = 008) A higher

incidence of moderate or severe cognitive impairment among patients versus controls. Tchen et al 2003 JCO Canada

 53 Brca pts performed worse in verbal learning, spatial functioning, and visual memory than BCS treated with surgery only No difference with between matched pts w/& w/0 breast cancer No relationship between survivors complaints and scores Castellon et al 2004 J Clin Exp

Neuropsychol USA

 104 Brca pts compared with 102 control over two years found

cognitive dysfunction improved in most patients over time Fan et al

2005 JCO Canada

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 25% of 187 Brca pts treated for benign tumors felt problems

w/body image Bukovic et al 2004 Coll Antropol.Croatia

 45% of 98 Brca pts felt differences in body image, 1-5yrs after

breast conservation surgery Bukovic et al 2005, Onkologie Croatia

 46 % of 185 Brca pts 5 yrs later were embarrassed w/ their body Bloom et al 2004, Psychooncology USA

 55% of 549 Brca pts,embarrassed w/ their body 0-7 months after diagnosis Fobair et al 2006, Psychooncology USA.

 58% of 108 Brca pts felt differences in body image 1-5 yrs after modified radical surgery for advanced stage Brca Bukovic et al 2005, Onkologie Croatia.

 70 % of 202 Brca pts were unhappy w/appearance, 4-42 mos Avis

et al 2005, J Clin Oncol USA

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 36% of 187 Brca pts w/benign tumors = deterioration in

sexual life. Bukovic et al 2004, Coll Antropol Croatia.

w/sex life after treatment vs 27% before Bukovic et al 2005,

Onkologie Croatia

diagnosis, w/sex problems Fobair et al 2006, Psychooncology USA

sexual desire Bloom et al 2004, Psychooncology USA

dissatisfied w/sex life after treatment vs 30% before Bukovic et al

2005, Onkologie, Croatia

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 19% or 6/39 pts w/rectal ca recovered normal

Rectum Japan

Surg.Canada

surgery vs 91% before Hendren et al 2005, Ann Surg.Canada

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 45% of 96 men w/prostate ca & brachytherapy

w/ED 2.5 yrs later Finney et al 2005, Urology Australia

w/ED (0) % before) Merrick et al 2005, Int J Radiat Oncol Biol Phys USA

radiotherapy, w/ED. Potosky et al 2000, JNCI USA

w/ED (40% before) Korfage et al 2005, Int J Cancer The

Netherlands

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 79.6% of 1156 men w/prostate ca, 55-74 &

rad’s or surgery w/ED (36% before) Schover et al 2002, Cancer USA

(31% before) Korfage et al 2005, Int J Cancer The Netherlands.

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 Physical exercise improved mortality risk, physical energy, mood, vigor, and sexual functioning.

 Group Support, helped survivors decrease stress, anxiety and depression, and loneliness while

improving emotional well-being and vigor.

 Journal writing was effective in decreasing

survivor’s pain, self blame, and physical

symptoms, and improved emotional affect and

CD4+ lymphocyte count.

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 2,987 Nurses w/Brca followed from 1984-2002 3-5 miles p/wk vs less active Results: the unadjusted mortality risk reduction was 6% at 10 years for those who walked 3 –5 mls per week Holmes et al 2005, JAMA USA.

36% w/ED prior to treatment Schover et al 2002, Cancer USA

Increases in exercise resulted in higher scores of SF physical health, (p = 005) Kendall et al 2005, Qual Life Res USA

exercise, or supervised exercise Physical functioning

increased by 5.7 pts in self directed group, 2.2 in

supervised, decreased 4.1 pts in control group, Segal et al 2001, JCO Canada

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 111 ca pts randomized to 14 week training or to controls The fatigue score decreased x 17 pts in control group and 5.8 in active group Thorsen et al 2005 JCO Norway

higher level physical activity = better sexual functioning Dahn et al

2005, Urology USA

in fitness were correlated w/improvements in depression but not w.anxiety Midtgaard et al 2005, Palliat Support Care Denmark.

physical fitness, activity levels, treatment related symptoms, physical & role functioning Adamsen et al 2006 Support Care Cancer Denmark

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 66 men w/Prostate ca randomized to walking (33) or control (33) Control pts Exercise group increased their distance walked (13.2%, P = 0.0003) Controls improved their fatigue scores,

exercisers did not Windsor et al 2004, Cancer Scotland, UK

treatment Women who walked 90 minutes 3x’s week had less

fatigue, emotional.distress and better QOL than those who

were less active Mock et al 2001 Cancer Practice USA

brca pts Regular exercisers reported more positive attitudes re:

physical condition, vigor, sexual attractiveness, less

confusion, fatigue, depression and better mood Pinto & Trunzo

2004 Mayo Clin Proc USA

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 Meta-Analysis of 116 studies found benefits for adults w/ cancer in relation to anxiety, depression mood, nausea, vomiting pain and knowledge Devine & Westlake 1995, Oncol Nurs Forum USA.

 303 Brca pts, in 3 yr study found trend (p=0.05) w/

intervention group having reduced anxiety vs.controls Kissane et al

2003, Psychooncology Australia

complementary/alternative interventions (CAM) 91% SG & 80% CAM improved symptoms of PTSD; only support group had significantdecreases in overall stress. Levine et al 2005, Psychooncology USA

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 154 Brca pts assessed for emotion regulation and

adjustment over 4 pts time 12 week Interv 54 group, 56 decliners,

44 control At 4 mo’s Interv.pts.+ better emotional well-being &

at 12 mo’s + decrease in emotional suppression = showing

delayed impact Cameron et al 2006, Psychooncology, New Zealand

fewer problems with mood and +higher scores vigor vs

controls Fukui et al 2000, Cancer Japan

 151 Brca pts, 6 week interv 46 participants, Interv group

confidants vs controls Fukui et al 2003, Oncol Nurs Forum, Japan

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 134 Ca pts offered 10 weekly 2 hour groups in 10 cities

in Switzerland QL assessed x 3 QL improved in

et al 2000 Schweiz Med Wochenschr Switzerland.

interv.vs 61 controls 102 completed Group members

2001, Arch Gen Psychiatry USA.

partners reported less POMS and greater marital

satisfaction Bultz et al 2000, Psychooncology Canada

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 104 Ca pts rand to write about emotions or a nonemotional topic, 20

min/day for 3 days Eval.@ 0 & 6 mos Written disclosure buffered the effects

of social constraints on stress at 6-month follow-up Zakowski et al 2004, Health Psychol USA.

 92 Fibromyalgia pts rand to trauma writing group, a control writing

group or control 20 minutes 3 days (1) week Eval @ 0, & 4, & 10 mo follow-up Trauma group = reduction in pain, fatigue & psychological well-being

at 4 mo follow-up, but not at 10 month Broderick et al 2005, Psychosom Med USA.

 60 Brca pts rand to 4 sessions 1) EMO=deepest thoughts and feelings; 2) POS= positive thoughts and feelings; 3) CTL= facts about their breast cancer experience EMO most useful for women low in avoidance POS most useful for women high in avoidance EMO group decreased physical symptoms Both EMO and POS had fewer medical appointments for cancer related morbidities Stanton et al 2002, JCO, USA

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 50 adolescents with asthma, randomized to write

for 3 days at home about stressful events (disclosure) or control

topics 0 & 2 months after writing Disclosure writing led to improved emotional affect and self blame Warner et al 2006, J Pediatr Psychol USA

 48 women with chronic pelvic pain wrote 3 days

about stressful consequences of pain (disclosure) or positive writing (control) Disclosure writing resulted in less pain intensity and less disability among women with greater difficulty in writing disclosure Norman et al 2004, Psychosom Med, USA.

 37 HIV infected pts randomized to emotional or

lymphocyte count over controls Petrie et al 2004, Psychosom Med, New Zealand

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 9 studies found improvements in sleep quality, mood, stress, related symptoms, and overall quality of life Bower et al, 2005, Cancer Control USA.

cancer- 38 cancer survivors randomly assigned (20/18) to a 7-week yoga

program had better quality of life, better emotional function, and fewer physical symptoms Culos-Reed et al, 2006, PsychoOncology Canada.

 20 studies on meditation (397 intervention/561controls) found benefit for cancer patients in better mood, less anxiety, better autoimmune

function, and less emotional disturbance Arias et al 2006, J Altern Complement Med USA

 154 breast cancer patients w/12 week intervention with relaxation,

guided imagery, meditation, emotional expression, behavior

modification reported increase in relaxation techniques, sense of

control, emotional well-being, coping, and less cancer worry Cameron et al

2006, PsychoOncology, NZ.

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 Using mixed methods of artistic therapy, this pilot study evaluated the effects of a creative arts therapy o the quality life of childrn receiving chemotherapy.

 Using a 2-group, repeated measures, randomized controlled design, they compared creative arts therapy with a volunteer’s attention (n=16)

 Statistical analysis suggested an improvement in: 1) parents report of child’s hurt (P=.03); 2) parents report of child’s nausea (P=.0061)

 After using a nonrandomized phase with the children, they found there was improved mood (P=.01); children were more excited (<.05);

happier (P <.02) and less nervous (P<.02)

 Madden JR, Mowry P, Gao D, Cullen PM, Foreman NK J

 Pediatr Oncol Nurs 2010 May-Jun (30 133-45)

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 Physical exercise improved mortality risk, physical

energy, mood, vigor, and sexual functioning.

and depression, and loneliness while improving

emotional well-being and vigor.

 Journal writing was effective in decreasing survivor’s

pain, self-blame, and physical symptoms, and improved emotional affect.

well-being, coping and reduce worry Yoga helped with sleep, mood, & quality of life

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 Psychosocial Problems range from 25% to over 50% of

survivors for distress, fatigue and sexual problems

yoga and imagery have demonstrated effectiveness in

helping patients improve physical, emotional health and sexual health.

 These interventions are relatively easy to initiate in

medical or community settings.

help them recover.

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