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Developing a Supportive Care and Psychosocial Treatment Program Stanford University Hospital, and the Ankara Oncology Research and Training Hospital Pat Fobair LCSW, MPH,... Rationale f

Developing a Supportive Care and Psychosocial Treatment

Program

Stanford University Hospital, and the Ankara Oncology Research and Training Hospital

Pat Fobair LCSW, MPH,

Why create Supportive Care

 The cancer patient’s journey includes

a threat to their life, and the need to face many medical and emotional

challenges

 Each person’s ability to cope with

cancer depends on their quality of

life, and personal strengths.

 Supportive care enhances patient’s coping skills and personal strengths

Supportive care gives patients a place

to talk about their problems

Rationale for Developing Supportive

Care Program

 Cancer patients often find it difficult

to maintain their pre-onset lifestyle

 Sustaining Quality of Life can

become a fulltime task for patients

 Patients find it helpful to receive

information, learn coping strategies, and ways of reducing the toxicity

and side effects of therapy

Goals of Supportive Care Program

 Improve the Quality of Life for newly diagnosed cancer patients and long term survivors of cancer

 Reduce the severity of side effects

related to disease and treatments.

 Expand available supportive activities

to meet additional needs.

 Provide patients with education about their illness through lectures, classes, and support groups journal writing

Developing Supportive Care at

Stanford

 Our program at Stanford developed

slowly, gaining acceptance

 Groups for patients with Hodgkin’s

disease led to adding art therapy.

 Groups for breast cancer survivors led to increasing education and activities

 An infusion of outside money in1999 led

to a program with a larger scope.

Staffing at Stanford Cancer Center

2000-2005

 Nurse Director

 Nutritionist

 Psychologist/Social Worker

 Exercise Program, Physical

Therapist, exercise Physiologist

 Program Instructors in Yoga,

Qigong, Group Therapists

 Community Outreach-Health Library

 Improved sense of well-being=

Yoga, Guided imagery, Groups.

Today’s Supportive Care Program

at Stanford’s Cancer Center, 2010

 Is available in all oncology clinics

 Includes classes and workshops;

Supportive Care Program at Stanford, 2010

 Has activities 5 days per week

 15 minute chair massage 5 days

 Understanding chemotherapy 2 x’s

 Exercise, Yoga, 7 times per week

 Nutrition appointments 5 days/week

 Groups-7 groups over 4 days/week

 Writing through cancer 1 x month

Initiating Supportive Care in Turkey,

2007-2010

 After meeting new colleagues,

Derya Akbiyik, MD and Haldun

Soygur, MD in Venice, Italy in 2006

 I was invited to speak in Istanbul

and Capadoccia, Turkey in 2007

 In 2008, we wrote a Fulbright grant

to initiate a supportive care

program at the Ankara Oncology

Research and Training Hospital

Before an idea can be developed

there has to be a dream!

Specific Purpose of Program

 Provide patients with education about their illness

 Expand supportive activities in occupational and group therapy

 Reduce patient’s anxiety and

depression

 Improve patients’ coping skills

 Improve their quality of life

Planning Process:

Ask Staff and Patients about Need

 Consult with Hospital Director and

Health Minister, determine willingness

to support a Supportive Care Program.

 Ask Cancer patients to describe their

stress related needs.

 Consult with physicians, nurses

psychologists, and social workers about patients’ need for psychosocial

treatment

Planning Process in Turkey-2008

 Gained acceptance of Administrator,

 Consulted with patients and staff,

 Initiated a pilot program to

demonstrate feasibility of idea,

 Gave feed-back on program to

administration, hospital staff and

physicians,

 Sought funding from Health

Minister, government funds

Our assessment of patient needs

 Hospital and Dormitory-housed

patients spend many hours without meaningful activity.

 Anxiety and depression among

patients are frequent problems, not routinely evaluated.

 Patients want to learn more about cancer, and how to cope with

personal/family problems.

Patients want psychosocial treatment

to help

with- Education about cancer & treatment

 Coping with personal and family

Anxiety and Depression were important

topics

Occupational Therapy Room

Results of Survey

 There was a need for psychosocial

treatment for hospitalized, dormitory, and clinic patients

 There were staff interested in

working with patients in occupational therapy and group therapy programs

 There was adequate space that can

be dedicated for this purpose

Challenges on the agenda!

We need to do the

following- Create budget Secure available

funding

 Involve physician teams: Surgical,

Medical, Radiation Oncologists

 Assemble permanent staff dedicated

to growing the Psychosocial

Treatment Program for the Ankara

Oncology Research and Training

Hospital, a first for Turkey

In closing

 We initiated a Psychosocial Treatment

Program which enhanced the quality of patient care at Ankara Oncology Hospital.

 The patients and the staff were

enthusiastic about participating in this

therapeutic program.

 If increased support and funding are

forthcoming this innovative program will

be expanded Thank you.