The big book of special education resources SRG

The idea for writing The Big Book of Special EducationResources first came to us when we were looking for acomprehensive information source for members in TheAmerican Academy of Special

[SRG]

This book is dedicated to my wife, Anita, and two children,Collin and Brittany, who give me the greatest life imaginable.The long hours it took to finish this book would never havebeen possible without the support of my loving wife Herconstant encouragement, understanding, and love provided

me with the strength I needed to accomplish my goals I thankher with all my heart

I also dedicate this book to my parents, who have given me somuch support and guidance throughout my life Their words

of encouragement and guidance have made my professionaljourney a very rewarding and successful experience

—G G

This book is dedicated to my wife, Jackie, and my twochildren, Jacqueline and Scott, who provide me with the loveand purpose for undertaking projects that will hopefullyenhance the lives of others The fact that they are such aloving presence in my life is the reason why my life has beenblessed

I also dedicate this book to my parents, who provided me withthe secure and loving foundation from which to grow; mysister Carol, who has always made me smile and laugh; and

my brother-in-law George, who has always been a verypositive guiding light in my professional journey

—R P

Copyright © 2006 by Corwin Press

First Carrel Books edition 2015

All rights reserved No part of this book may be reproduced inany manner without the express written consent of thepublisher, except in the case of brief excerpts in criticalreviews or articles All inquiries should be addressed to CarrelBooks, 307 West 36th Street, 11th Floor, New York, NY10018

Carrel Books may be purchased in bulk at special discountsfor sales promotion, corporate gifts, fund-raising, oreducational purposes Special editions can also be created tospecifications For details, contact the Special SalesDepartment, Carrel Books, 307 West 36th Street, 11th Floor,

Printed in the United States of America

Preface

Acknowledgments

About the Authors

Part 1 National Disability Resources

Clearinghouses

Disability Organizations

Part 2 National Toll-Free Numbers for NationalOrganizations Concerned With Disability and Children’sIssues

Part 3 Disability Publishers Offering Books, Videos, andJournals on Specific Disabilities, Special Education,Parenting, and Other Disability and Special Needs TopicsPart 4 Disability-Related Resources of Agencies andOrganizations in the United States That Address Disability-Related Issues, Listed by States

About the Agencies and Organizations

Alabama

Alaska

Arizona

Part 5 Additional Resources

Bullying and Behavior Issues

Individuals With Disabilities Education Improvement Act(IDEA) and Individualized Education Programs (IEPs)

Including Students With Disabilities in State and DistrictAssessments

Learning Disabilities

Teaching Strategies and Materials

Summer Camps for Children With Disabilities

The idea for writing The Big Book of Special EducationResources first came to us when we were looking for acomprehensive information source for members in TheAmerican Academy of Special Education Professional(AASEP) The National Association of Special EducationTeachers (NASET), and The National Association of ParentsWith Children in Special Education (NAPCSE) As officers

in all three organizations, we were looking for one particularresource book where we could find all necessary informationfor both parents and professionals in the field of specialeducation Nothing that we read seemed to have all theinformation in one all-inclusive directory

That set us on a mission to write a practical, useful, andhelpful book of special education resources We interviewednumerous parents and professionals to find out what theywould want in a comprehensive book of information ondisabilities and special education After months of research,

we narrowed down areas that came up consistently as onesthat were “absolutely necessary” for this type of book to be apractical resource tool

The Big Book of Special Education Resources issubsequently broken down into 5 sections Each section isalphabetized, A-Z, for your convenience

We hope you find this book to be a tremendously valuableresource guide It was designed to meet your everyday needsand help you in doing research in all areas of specialeducation

In the course of writing this book, we have encountered manyprofessional and outstanding sites It has been our experiencethat those resources have contributed and continue tocontribute enormous information, support, guidance, andeducation to parents, students, and professionals in the area ofspecial education Although we have accessed manyworthwhile sites, we would especially like to thank andacknowledge the National Dissemination Center for Childrenand Youths With Disabilities (NICHCY) NICHCY is thecenter that provides information to the nation on disabilities

in children and youth; programs and services for infants,children, and youth with disabilities; IDEA, the nation’sspecial education law; No Child Left Behind, the nation’sgeneral education law; and research-based information oneffective practices for children with disabilities Itsprofessional resources were critical to making this book acomprehensive information source for parents andprofessionals

We both extend sincere thanks to Kylee Liegl at CorwinPress Her constant encouragement and professionalism madethis project a very worthwhile and rewarding experience

I, Dr George Giuliani, extend sincere thanks to all of mycolleagues at Hofstra University in the School of Educationand Allied Human Services I am especially grateful to thosewho have made my transition to Hofstra University such asmooth one, including Dr Penelope J Haile (AssociateDean), Dr Daniel Sciarra (Chairperson), Dr Frank Bowe, Dr.Diane Schwartz (Graduate Program Director of Special

Education), Dr Darra Pace, Dr Gloria Wilson, Dr LaurieJohnson, Dr Joan Bloomgarden, Dr Tai Chang, Dr JamieMitus, Dr Estelle Gellman, Dr Joseph Lechowicz, Dr RonMcLean, Adele Piombino, Marjorie Butler, Eve Byrne,Sherrie Basile, and Linda Cappa.

I would also like to thank my brother and sister, Roger andClaudia, mother-in-law, Ursula Jenkeleit, sisters-in-law,Karen and Cindy, brothers-in-law, Robert and Bob, andgrandfather, all of whom have provided me with theencouragement and reinforcement in all of my personal andprofessional endeavors

I, Dr Roger Pierangelo, extend thanks to the faculty,administration, and staff in the Department of GraduateSpecial Education and Literacy at Long Island University; thestudents and parents of the Herricks Public Schools that Ihave worked with and known over the past twenty-eightyears; the late Bill Smyth, a truly gifted and “extraordinaryordinary” man; Helen Firestone, for her influence on hiscareer and tireless support of him; and Ollie Simmons, for herfriendship, loyalty, and great personality

About the Authors

George Giuliani, J.D., PSY.D., FSICPP, FCICPP

Dr George Giuliani is a full-time Associate Professor atHofstra University’s School of Education and former Director

of the Graduate School programs in Special Education He isalso an Adjunct Professor at Hofstra University’s Maurice A.Deane School of Law where he teaches the course, SpecialEducation Law Dr Giuliani earned his B.A from the College

of the Holy Cross, M.S from St John’s University, J.D fromCity University of New York School of Law, and M.A andPsy.D from Rutgers University He earned BoardCertification as a Diplomate Fellow in Advanced Child andAdolescent Psychology, Board Certification as a DiplomateFellow in Forensic Sciences from the International College ofProfessional Psychology, and Board Certification in SpecialEducation from the American Academy of Special EducationProfessionals

Dr Giuliani is a member of the American PsychologicalAssociation, Education Law Association, New York StatePsychological Association, American Bar Association,Suffolk County Psychological Association, Psi Chi, AmericanAssociation of University Professors, and the Council forExceptional Children Dr Giuliani is the Executive Director

of The National Association of Special Education Teachers,Executive Director of the American Academy of SpecialEducation Professionals, and President of the NationalAssociation of Parents with Children in Special Education

He has been a consultant for school districts and earlychildhood agencies, and has provided numerous workshops

for parents, teachers and other professionals on a variety ofspecial education and psychological topics.

Dr Giuliani is the co-author of various articles in the NewYork State Family Law Review of the New York State BarAssociation He is the co-author of The Educator’s DiagnosticManual of Disabilities and Disorders (EDM), The SpecialEducators Comprehensive Guide to 301 Diagnostic Tests, andThe Special Educator’s Complete Guide to 109 DiagnosticTests, all published by Jossey Bass; the co-author of collegetextbooks titled, Assessment in Special Education: A PracticalApproach (4th ed.); Transition Services in Special Education:

A Practical Approach; and Learning Disabilities: A PracticalApproach to Foundations, Diagnosis, Assessment, andTeaching, all published by Allyn and Bacon; co-author ofWhy Your Students Do What They Do-and What to Do WhenThey Do It-Grades K-5; Why Your Students Do What TheyDo-and What to Do When They Do It-Grades 6-12; CreatingConfident Children in the Classroom: The Use of PositiveRestructuring, and What Every Teacher Should Know aboutStudents with Special Needs, all published by Research Press;co-author of The Big Book of Special Education Resources,Teaching Students With Learning Disabilities; Teaching in aSpecial Education Classroom; Teaching Students WithAutism Spectrum Disorders; Classroom Management forStudents With Emotional and Behavioral Disorders;Frequently Asked Questions About Response to Intervention;Classroom Management Techniques for Students WithADHD; Understanding Assessment in the Special EducationProcess; Understanding, Developing, and Writing EffectiveIEPs; Special Education Eligibility: and 100 FrequentlyAsked Questions About the Special Education Process, allpublished by Corwin Press

Dr Giuliani recently completed his latest book with JessicaKingsley Publishers, The Comprehensive Guide to SpecialEducation Law.

Roger Pierangelo, Ph.D., FSICPP, FCICPP

Dr Roger Pierangelo is a full-time Associate Professor in theDepartment of Special Education and Literacy at Long IslandUniversity He has been an administrator of special educationprograms, served for 18 years as a permanent member ofCommittees on Special Education, has over 35 years ofexperience in the public school system as a general educationclassroom teacher and school psychologist, and a consultant

to numerous private and public schools, PTA, and SEPTAgroups Dr Pierangelo has also been an evaluator for the NewYork State Office of Vocational and Rehabilitative Services;

a director of a private clinic; and a consultant to CNN News,

US News, and World Report He is a New York Statelicensed clinical psychologist and has been in private practicefor over 30 years, is a certified school psychologist, and aBoard Certified Diplomate Fellow in Child and AdolescentPsychology and Forensic Psychology Dr Pierangelocurrently holds the office of Executive Director of theNational Association of Special Education Teachers(NASET), Executive Director of The American Academy ofSpecial Education Professionals (AASEP), and Vice-President of The National Association of Parents withChildren in Special Education (NAPCSE)

Dr Pierangelo earned his B.S from St John’s University,M.S from Queens College, Professional Diploma fromQueens College, Ph.D from Yeshiva University, andDiplomate Fellow in Child and Adolescent Psychology and

Forensic Psychology from the International College ofProfessional Psychology Dr Pierangelo is a member of theAmerican Psychological Association, New York StatePsychological Association, Nassau County PsychologicalAssociation, New York State Union of Teachers, and PhiDelta Kappa.

Dr Pierangelo is the author of the Special Educator’sSurvival Guide and the Special Education Teacher’s Book ofLists, published by Jossey Bass, and 301 Ways to be a LovingParent, published by SPI Publishers He is is the co-author ofThe Educator’s Diagnostic Manual of Disabilities andDisorders (EDM), The Special Educators ComprehensiveGuide to 301 Diagnostic Tests, and The Special Educator’sComplete Guide to 109 Diagnostic Tests, all published byJossey Bass; the co-author of college textbooks titled,Assessment in Special Education: A Practical Approach (4thed.); Transition Services in Special Education: A PracticalApproach; and Learning Disabilities: A Practical Approach toFoundations, Diagnosis, Assessment, and Teaching, allpublished by Allyn and Bacon; co-author of Why YourStudents Do What They Do-and What to Do When They DoIt-Grades K-5; Why Your Students Do What They Do-andWhat to Do When They Do It-Grades 6-12; CreatingConfident Children in the Classroom: The Use of PositiveRestructuring, and What Every Teacher Should Know aboutStudents with Special Needs, all published by Research Press;co-author of The Big Book of Special Education Resources,and the co-author of “The Educator’s Step-by-Step Guide to ” 10-book series, with the titles: The Educator’s Step-by-StepGuide to IEP Development, The Educator’s Step-by-StepGuide to the 100 Most FAQ Asked by About SpecialEducation the Special Education Process, The Educator’s

Step-by-Step Guide to Eligibility in Special Education, TheEducator’s Step-by-Step Guide to Assessment in SpecialEducation, The Educator’s Step-by-Step Guide to Workingwith Students with ADHD, The Educator’s Step-by-StepGuide to Response to Intervention (RTI), The Educator’sStep-by-Step Guide to Classroom Management for Studentswith Emotional and Behavioral Disorders, The Educator’sStep-by-Step Guide to Setting Up Your Special EducationClassroom, The Educator’s Step-by-Step Guide to ClassroomManagement for Students with Autism, and The Educator’sStep-by-Step Guide to Classroom Management for Studentswith Learning Disabilities Dr Pierangelo has also published

6 articles for the New York State Bar Association’s FamilyLaw Review on separation and divorce issues

Materials available in Spanish

The Center has been established by the Office of SpecialEducation Programs, U.S Department of Education, to giveschools capacity-building information and technicalassistance for identifying, adapting, and sustaining effectiveschoolwide disciplinary practices The Center operates as aconsortium of researchers, advocates, family members,teacher educators, professional association leaders, and modeldevelopers and receives guidance from an external evaluationteam A network of researchers has been established toprovide feedback on Center-related products and activities,

receive and disseminate Center-related products andinformation, and participate in Center-sponsored events.Clearinghouse on Disability Information

Office of Special Education and Rehabilitative ServicesCommunication and Media Services

Room 3132, Switzer Building

DB-LINK

National Information Clearinghouse on Children Who AreDeaf-Blind

345 N Monmouth Avenue

Monmouth, OR 97361

(800) 438-9376 (Voice); (800) 854-7013 (TTY)

E-mail:info@nationaldb.org

Web:https://nationaldb.org/

Materials available in Spanish

DB-LINK’s extensive resources and personalized service areavailable to anyone needing information about or for deaf-blind children Its goal is to help parents, teachers, and others

by providing them with information to foster the skills,strategies, and confidence necessary to nurture and empowerdeaf-blind children DB-LINK is a federally funded servicethat identifies, coordinates, and disseminates informationrelated to children and youth from birth through 21 years ofage, at no cost

ERIC Clearinghouse on Disabilities and Gifted EducationCouncil for Exceptional Children

(Project is no longer in operation, but a substantial Web site

of disability-related materials is still available)

Web:http://ericec.org

The Council for Exceptional Children (CEC) has been thelargest international professional organization dedicated toimproving educational outcomes for individuals withexceptionalities, students with disabilities, and the gifted

CEC has advocated for appropriate governmental policies,has set professional standards, provided continualprofessional development, advocated for newly andhistorically underserved individuals with exceptionalities, andhelped professionals obtain conditions and resourcesnecessary for effective professional practice.

of 2002 A fundamental goal for ERIC’s future is to increasethe availability and quality of research and information foreducators, researchers, and the general public

Fetal Alcohol Spectrum Disorders Center for ExcellenceCenter for Substance Abuse Prevention

Substance Abuse and Mental Health Services AdministrationE-mail:fasdcenter1@ngc.com

Fetal alcohol spectrum disorders (FASD) is an umbrella termdescribing the range of effects that can occur in an individualwhose mother drank alcohol during pregnancy These effectsmay include physical, mental, behavioral, and learningdisabilities, with possible lifelong implications It refers toconditions such as fetal alcohol syndrome (FAS), fetalalcohol effects (FAE), alcohol-related neurodevelopmentaldisorder (ARND), and alcohol-related birth defects (ARBD).Each year, as many as 40,000 babies are born with FASD,costing the nation about $4 billion

Genetic and Rare Diseases Information Center

grants, programs, conferences, workshops, information, andactivities.

HEATH Resource Center (National Clearinghouse onPostsecondary Education for Individuals with Disabilities)The George Washington University

at UNITED STATES campuses, vocational and technicalschools, and other postsecondary training entities

Health Resources and Services Administration InformationCenter (for publications and resources on health care servicesfor low-income, uninsured individuals and those with specialhealth care needs)

Health Resources and Services Administration

U.S Department of Health and Human Services

Parklawn Building, 5600 Fishers Lane

by a health care system that assures access to comprehensive,culturally competent, quality care

Laurent Clerc National Deaf Education Center andClearinghouse

KDES PAS-6

800 Florida Avenue, NE

Washington, DC 20002-3695

National Center on Secondary Education and TransitionUniversity of Minnesota

6 Pattee Hall, 150 Pillsbury Drive SE

1 Providing students with disabilities with improved accessand success in the secondary education curriculum

2 Ensuring that students achieve positive postschool results

in accessing postsecondary education, meaningfulemployment, independent living, and participation in allaspects of community life

3 Supporting student and family participation in educationaland postschool decision making and planning

4 Improving collaboration and system linkages at all levelsthrough the development of broad-based partnerships andnetworks at the national, state, and local levels

National Digestive Diseases Information ClearinghouseTwo Information Way

Materials available in Spanish

The National Digestive Diseases Information Clearinghouse(NDDIC) was established in 1980 to increase knowledge andunderstanding about digestive diseases among people with

these conditions and their families, health care professionals,and the general public To carry out this mission, NDDICworks closely with a coordinating panel of representativesfrom federal agencies, voluntary organizations on the nationallevel, and professional groups to identify and respond toinformational needs about digestive diseases.

National Health Information Center

Materials available in Spanish; Spanish speaker on staff

The National Health Information Center (NHIC) is a healthinformation referral service NHIC puts health professionalsand consumers who have health questions in touch with thoseorganizations that are best able to provide answers TheHealth Information Resource Database includes 1,400organizations and government offices that provide healthinformation upon request Entries include contactinformation, short abstracts, and information aboutpublications and services the organizations provide

National Institute of Arthritis and Musculoskeletal and SkinDiseases Information Clearinghouse

Materials available in Spanish; Spanish speaker on staff

The mission of the National Institute of Arthritis andMusculoskeletal and Skin Diseases is to support research intothe causes, treatment, and prevention of arthritis andmusculoskeletal and skin diseases, the training of basic andclinical scientists to carry out this research, and thedissemination of information on research progress in thesediseases

National Institute of Neurological Disorders and StrokeNIH Neurological Institute

P.O Box 5801

Bethesda, MD 20824

(800) 352-9424; (301) 496-5751; (301) 468-5981(TTY)E-mail Web Form:http://www.ninds.nih.gov/contact_us.htm

Materials available in Spanish; Spanish speaker on staffThe National Institute of Neurological Disorders and Stroke(NINDS) conducts and supports research on brain andnervous system disorders The mission of NINDS is to reducethe burden of neurological disease—a burden borne by everyage group, by every segment of society, by people all over theworld

National Institute on Deafness and Other CommunicationDisorders Clearinghouse

Materials available in Spanish; Spanish speaker on staff

The National Institute on Deafness and Other CommunicationDisorders (NIDCD) is one of the institutes that compose theNational Institutes of Health (NIH) NIH is the Federalgovernment’s focal point for the support of biomedicalresearch Its mission is to uncover new knowledge that willlead to better health for everyone Simply described, the goal

of NIH research is to acquire new knowledge to help prevent,detect, diagnose, and treat disease and disability.

National Institute on Mental Health

Web:http://www.nimh.nih.gov/index.shtml

Materials available in Spanish; Spanish speaker on staff

The National Institute on Mental Health’s (NIMH) mission is

to reduce the burden of mental illness and behavioraldisorders through research on mind, brain, and behavior Thispublic health mandate demands that powerful scientific tools

be harnessed to achieve better understanding, treatment, andeventually, prevention of these disabling conditions that affectmillions of Americans

National Organization for Rare Disorders

P.O Box 1968

“orphan” diseases and assisting the organizations that servethem NORD is committed to the identification, treatment,and cure of rare disorders through programs of education,advocacy, research, and service.

National Rehabilitation Information Center

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

(800) 346-2742; (301) 459-5900 (301) 459-5984 (TTY)E-mail:naricinfo@heitechservices.com

the U.S Department of Education NIDRR operates inconcert with the Rehabilitation Services Administration(RSA) and the Office of Special Education Programs (OSEP).

It is the mission of NIDRR to generate, disseminate, andpromote new knowledge to improve the options available todisabled persons The ultimate goal is to allow theseindividuals to perform their regular activities in thecommunity and to bolster society’s ability to provide fullopportunities and appropriate supports for its disabledcitizens

Research and Training Center on Family Support andChildren’s Mental Health, Portland State University

Materials available in Spanish; Spanish speaker on staff

The Research and Training Center on Family Support andChildren’s Mental Health was established in 1984 at PortlandState University, Portland, Oregon, with funding from theNational Institute on Disability and Rehabilitation Research(NIDRR), U.S Department of Education, and the Center forMental Health Services, Substance Abuse and Mental Health

Services Administration, U.S Department of Health andHuman Services The Center is dedicated to promotingeffective community-based, culturally competent, family-centered services for families and their children who are ormay be affected by mental, emotional, or behavioraldisorders This goal is accomplished through collaborativeresearch partnerships with family members, service providers,policy makers, and other concerned persons.

Research and Training Center on Independent Living

Materials available in Spanish

The Research and Training Center on Independent Living(RTC/IL) is made up of a team of people who are committed

to research and training to enhance independent living forpeople with disabilities Staff members work on projects thatboth interest them and address a need in the field A projectmight be the sole activity under a grant; however, multipleprojects are commonly funded under larger or “center” grants.Projects bridge local, state, and national levels

2175 East Francisco Boulevard, Suite L

San Rafael, CA 94901

(800) 455-7970; (415) 455-4575 (Voice)

(415) 455-0491 (TTY)

Web:www.ataccess.org

The mission of the Alliance for Technology Access (ATA) is

to increase the use of technology by children and adults withdisabilities and functional limitations The ATA is a growingnational network of technology resource centers,organizations, individuals, and companies ATA encouragesand facilitates the empowerment of people with disabilities toparticipate fully in their communities

The American Academy of Special Education Professionals(AASEP)

1201 Pennsylvania Avenue, NW, Suite 300

professional careers AASEP is committed to standards ofexcellence and innovation in educational research, practice,and policy AASEP works to enhance professional practicefor professionals in special education and to build publicsupport for high-quality special education programs.

American Brain Tumor Association

One publication in Spanish

The American Brain Tumor Association is a not-for-profit,independent organization Not affiliated with any oneinstitution, it serves individuals globally and awards funds toresearchers throughout the United States and Canada TheAssociation exists to eliminate brain tumors through researchand to meet the needs of brain tumor patients and theirfamilies

American Council of the Blind

1155 15th Street NW, Suite 1004

Washington, DC 20005

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

(800) 232-5463; (212) 502-7662 (TTY)

E-mail:afbinfo@afb.net

Web:www.afb.org

Materials available in Spanish; Spanish speaker on staffThe American Foundation for the Blind (AFB)—theorganization to which Helen Keller devoted her life—is anational nonprofit whose mission is to ensure that the tenmillion U.S residents who are blind or visually impairedenjoy the same rights and opportunities as other citizens TheAmerican Foundation for the Blind promotes wide-ranging,systemic change by addressing the most critical issues facingthe growing blind and visually impairedpopulation—employment, independent living, literacy, andtechnology In addition to its New York City headquarters,AFB maintains four national centers in cities across theUnited States and a Governmental Relations office inWashington, DC.

American Occupational Therapy Association

occupational therapy through standard setting, advocacy,education, and research on behalf of its members and thepublic The contributions of occupational therapy to health,wellness, productivity, and the quality of life are widely used,understood, and valued by society.

American Physical Therapy Association

1111 North Fairfax Street

Materials available in Spanish; Spanish speaker on staff

The American Physical Therapy Association (APTA) is anational professional organization representing more than63,000 members Its goal is to foster advancements inphysical therapy practice, research, and education

American Society for Deaf Children

P.O Box 3355

Gettysburg, PA 17325